You may find the following resources helpful.
ADDITIONAL INFORMATION
MedlinePlus Health Information: Hypophosphatasia
National Institutes of Health Office of Rare Diseases Research - Genetic and Rare Diseases Information Center: Hypophosphatasia
Orphan Net
PATIENT SUPPORT
NORD: National Association for Rare Disorders (USA)
Soft Bones: The US Hypophosphatasia Foundation
Hypophosphatasie Europe (EU)
Hypophosphatasie Deutschland e.V. (Germany)
The MAGIC Foundation